Resources

Institutions

Hospital for Sick Children; Toronto, Ontario www.sickkids.ca
Dr. Elena Pope; Vascular Tumors Service (VAST), 416-813-6883

St. Justine University Hospital; Montreal, Quebec www.chu-sainte-justine.org
Dr. Julie Powell; Dermatology, 514-345-4982

Children’s Wisconsin Hospital;  Milwaukee, Wisconsin www.chw.org
Dr. Beth Drolet; Dermatology, 414-955-2818

Boston Children’s Hospital; Boston, Massachusetts www.childrenshospital.org
Vascular Anomalies Centre, 617-355-5226

Cincinnatti Children’s; Cincinatti, Ohio www.cincinnatichildrens.org
Dr. Denise Adams; Hemangioma and Vascular Malformation Center, 513-636-2569

Associations

NOVA (National Organization of Vascular Anomalies) www.novanews.org

PHACE Syndrome Community; USA PHACE Syndrome Support http://phacesyndromecommunity.org/

Family Support

Facebook page for Parents & Family https://www.facebook.com/groups/phacesyndromecommunity/?bookmark_t=group

PHACE Syndrome Community www.phacesyndromecommunity.activeboard.com

Dealing with Bullying: www.bullyingnoway.gov.au

PHACE Syndrome Registry http://www.phaceregistry.com/

AboutFace; Support for people with facial differences http://www.aboutface.ca/

Community Care Access Centre http://healthcareathome.ca/

 

Blogs/Sites

http://angelphace.com/
http://themightyquinnduncan.blogspot.ca/
http://ourlittlelouise.blogspot.ca/

Funding

Centennial Infant and Child Centre has a good overview of funding sources available in Ontario www.cicc.ca/funding-sources-for-families