Hospital for Sick Children; Toronto, Ontario
Dr. Elena Pope; Vascular Tumors Service (VAST), 416-813-6883

St. Justine University Hospital; Montreal, Quebec
Dr. Julie Powell; Dermatology, 514-345-4982

Children’s Wisconsin Hospital;  Milwaukee, Wisconsin
Dr. Beth Drolet; Dermatology, 414-955-2818

Boston Children’s Hospital; Boston, Massachusetts
Vascular Anomalies Centre, 617-355-5226

Cincinnatti Children’s; Cincinatti, Ohio
Dr. Denise Adams; Hemangioma and Vascular Malformation Center, 513-636-2569


NOVA (National Organization of Vascular Anomalies)

PHACE Syndrome Community; USA PHACE Syndrome Support

Family Support

Facebook page for Parents & Family

PHACE Syndrome Community

Dealing with Bullying:

PHACE Syndrome Registry

AboutFace; Support for people with facial differences

Community Care Access Centre




Centennial Infant and Child Centre has a good overview of funding sources available in Ontario